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PEANUT ALLERGY


Dear Dr. Sue,

 

My five year old daughter has been diagnosed as being allergic to peanuts.  Since she'll be starting kindergarten next year, and I will have less control over her life, my anxiety has been steadily increasing.  What can I do to be sure that she'll be safe?

 

Anxious mom

 

                

 

 

Dear Mom,

True peanut allergy is a frightening matter, since it can definitely be life-threatening in a very short amount of time, following exposure to only a tiny amount of peanut allergen.

For those who don't understand the true magnitude of the problem, approximately 0.6% of children under age three are allergic to peanuts.  This incidence seems to be steadily increasing, probably because peanuts are so widely used and are so often included in the diets of children whose immune systems are not mature yet.  Peanut allergen also passes through breast milk, so children are often sensitized even before they get their first mouthful of solid food!  (For this reason, if your family has food allergies, don't eat peanut-containing foods while you are breastfeeding and don't feed peanut-containing foods to your children until they are at least three.)  It is believed that peanut allergy is the most common cause of food-allergy death in the United States.  A reaction to peanut allergen can include any or all of the following symptoms: hives, itching (anywhere), swelling (anywhere), red and watery eyes, runny nose, vomiting, diarrhea, stomach cramps, change in voice, cough, wheeze, difficulty swallowing, difficulty breathing, throat tightness, a sense of doom, dizziness, fainting, color change and death.  The reaction can occur immediately, occasionally causing death within minutes.  It can also be more slow in onset, taking an hour or two to develop.  Even if the first reaction is treated promptly with epinephrine (AS IT MUST BE!), there can be a second, delayed reaction four to six hours later, which can also be fatal.

The mainstay of avoiding an allergic reaction to peanuts is by avoiding peanuts, but that only sounds simple.  Peanuts are used in many prepared foods, including chili, egg rolls, candies, baked goods and many Asian foods.  There have also been fatalities in children who simply ate a cookie from a plate that had previously held cookies with peanuts in them, and in children who re-used a knife that had been used to spread peanut butter, even though it had been wiped "clean."

So what can you do to keep your daughter safe?

  • Your child should have a minimum of two doses of epinephrine at her school.  It needs to be IMMEDIATELY available.  It is best if it follows your child if she goes to a different room for music or P.E.

  • Every adult in the school needs to know who the children with significant allergies are, how to use the epinephrine, and when to give it (which is anytime a reaction is suspected; they must be aware that they should not wait for severe symptoms to develop).  This includes bus drivers, camp counselors, playground aides, and anyone else who might be the first to recognize a problem.

  • Your child should wear a Medic-Alert bracelet.

  • Once epinephrine is given, your child MUST be transported to a hospital Emergency Room, preferably by ambulance.  The school should not waste time trying to reach you:  they can call you from the hospital or call you while your child is enroute.  Find out if paramedics have Epi-pens available in your state (not all do).  If not, a school staff person should travel to the hospital with your child with the second dose of epinephrine in hand, and be prepared to use it if her symptoms worsen.

  • You should meet with school personnel yearly and before any special activity (such as a school-sponsored trip) to review your child's Anaphylaxis Plan.  Your daughter's pediatrician will make the plan, with input from you.

  • All school staff who might be involved in giving your daughter food or supervising activities involving food must know to read labels looking for peanut, or for other designations that could mean peanut (like hydrolyzed vegetable protein, or groundnuts.)  If your child will eat at school, I strongly suggest that you send a home-packed lunch, and instruct your daughter (and her teacher) that she cannot trade any part of her lunch with someone else.  If you decide to have her eat in the cafeteria, inform them in writing of her peanut allergy, and discuss with the cafeteria staff whether they have been instructed about cross-contamination of foods during preparation.  (They should have access to literature from the USDA called "Accommodating Children with Special Dietary Needs in the School Nutrition Program:  Guidance for School Food Service Staff.")

  • Ensure that food brought in for special occasions will be purchased in stores, rather than home-made, and will have intact labels with complete ingredient lists.

  • Teach your child not to even share food containers or silverware with another child.

  • Teach her to wash her hands before and after eating.

  • Send special treats to the school on party days, to substitute for any forbidden food, and consider keeping a supply of safe treats stored at school for those unexpected celebrations that may arise.

  • Ask the school to send a letter to every parent advising them that there are peanut allergic children attending the school, and requesting their cooperation in not sending any foods with peanuts in them to school.  The letter should also educate parents about the life-threatening nature of peanut allergy.  It could also discuss how easily cross-contamination can occur:  in jam or jelly by using the same knife used for peanut butter; in cookies by being in the same cookie jar which had held peanut butter cookies; or in donuts which may have touched peanut butter coated donuts.

  • Your daughter's teacher must remember her allergy when planning classroom activities: peanut butter is sometimes used to make homemade playdough and birdseed balls, and some stuffed toys and bean bags are made with peanut shells, for example.

     

Useful information and resources:

  • Dey Laboratories, maker of Epi-Pen Jr. (22 to 45 pound child) and Epi-Pen (over 45 pounds). Both are now available as a two-pack, with a free Epi-Pen trainer included.  These are self-injectable devices. 1-800-755-5560.

  • Anakit, a pre-loaded syringe, which also comes with two doses of epinephrine.  Made by Bayer Laboratories, Spokane, WA.

  • The Peanut Allergy Answer Book, $10.95, The Parents Guide to Food Allergies, $15.00
    Both available online at www.foodallergy.org, or by calling The Food Allergy and Anaphylaxis Network at 1-800-929-4040.

  • A Preschooler's Guide to Peanut Allergy, available for $5.00 plus $1.50 postage from The Ticketar Company, 1306 East 15th Ave., Vancouver, B.C. Canada, V5N 2E4, or email ticketar@mcd.on.ca
     

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